CF Founder and Lind Family In Need of Support

Jer

CF Founder, Creator
Feb 28, 2006
23,577
23,410
10,030
4/10/25 Update

Health Update – A Tough Turn, But Still Moving Forward

We wanted to share a development that’s thrown a bit of a wrench into things. Jeremy’s neurologist—an essential part of his care team—is abruptly retiring during a very critical time. This will force us to start over with a new neurologist at a different practice and within a different healthcare network altogether.

As you might imagine, this is more than a simple switch. It means re-establishing a new baseline, going through fresh evaluations, and trying to communicate Jer’s history and progression to someone who doesn’t know him or his case. It’s exhausting and a bit scary.

The timing couldn’t be worse. The Disability claim process is scheduled to take place after Jer’s neurologist has left and possibly before a new neurologist is in place. That means he may be without a specialist to speak to the progression of his condition during a critical part of the review. It puts some very important matters at risk, and we’re doing our best to navigate it—but it’s added a lot of stress.

We’re keeping our heads up and taking it one step at a time. As always, thank you all for your kindness, generosity, and continued support. It truly makes a difference in this fight.

Warmest Regards,
Jeremy and Rhonda
 

Jer

CF Founder, Creator
Feb 28, 2006
23,577
23,410
10,030
Surreal moment - As of 4pm today, I am officially unemployed for the first time since I was 15. All completely expected and part of the timing and process moving through STD and LTD. Still, another one of those feelings when you know a door has closed and locked behind you for the last time in your life.
 

Ms3r4ISU

Me: Mea culpa. Also me: Sine cura sis.
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Surreal moment - As of 4pm today, I am officially unemployed for the first time since I was 15. All completely expected and part of the timing and process moving through STD and LTD. Still, another one of those feelings when you know a door has closed and locked behind you for the last time in your life.
And yet you're not facing a stone wall with no way forward. And you're not alone.
 

Jer

CF Founder, Creator
Feb 28, 2006
23,577
23,410
10,030
Progress News and Final Update

Hi everyone,

We wanted to take a moment to share some important news and offer a heartfelt thank you. Your kindness, generosity, and encouragement over the past months have meant more than we can say. Every message, donation, and show of support has helped carry us through some incredibly challenging times—and we are deeply grateful.

Given the complexity and specifics of Jeremy’s symptoms and the progression of his Parkinson’s, we’ve been referred to the University of Iowa’s Advanced Neurology Center. This next step is significant, as it brings new hope for more specialized care and insight into managing this disease as it evolves. We’re optimistic about what this level of expertise might offer, though it comes with its own emotional weight and considerable logistical challenges.

This will likely be our final update here. While the road ahead is a steep climb and uncertain, your support has made it feel a little less lonely and a lot more possible. Thank you for standing beside us, for lifting us up, and for reminding us that we’re not walking this path alone.

With love and gratitude,
Jeremy and Rhonda

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Jer

CF Founder, Creator
Feb 28, 2006
23,577
23,410
10,030
That scooter as bad ass. we just need to pimp it out with ISU gear

We were blessed that a work friend of my wife had it available. Unfortunately, they bought it for her dad but he passed away about 2 weeks after getting it. It’s perfect though because we have trails out here so I can drive with the kids on the scooters to supervise them at the pool and parks this summer and not feel every tiny pebble of a normal one.