Yeah, I should have read the Terms and Conditions of this body better. Unfortunately past the warranty period too
CF Founder and Lind Family In Need of Support
- Thread starter Jer
- Start date
Well we have made it to 20% without a boo from the staff of CF. Thank you all who have supported Jer thus far. Let’s keep spreading the word.
Bumping again for the weekend crowd getting ready to melt down in the game day thread. Thank Jeremy for the ability to vent, have wild emotional swings, and anticipate Rulzzz at midnight by supporting Jer in this fight.
Thank you! I'm so proud of how open and compassionate this community is. Cyclones from anywhere being able to share their issues or struggles and getting support and encouragement from the community is one of the proudest things I could think of. You all rally to help people when they post about issues. I hope he doesn't mind me calling him out, but Rulzzz is an awesome example.
THIS IS NOT POLITICAL, PLEASE - FOR ME - DON’T MAKE IT SUCH IN THIS THREAD!
Ugh. We were in contact with a very influential person at the NIH through a former friend that has a billion connections regarding potential Parkinson’s trials run by the NIH. In case you didn’t know, the National Institutes of Health, run by the US gov’t is the largest source of research funding In the world for all neurological disorders.
Most studies largely targeted early detection, possible prevention, slowing down the progression, and specific symptom relief, as there is obviously no cure for your brain dying. Especially in atypical Parkinson’s like mine where it dies much faster and impacts every part of your body.
Unfortunately, and without reason or notice, the entire NIH Neurological Center was completely shut down, along with all studies, trials, funding, scientists, etc. This is absolutely devastating for neurological related diseases such as PD, ALS, Alzheimer’, MS, MD, brain tumors and cancer, stroke, epilepsy, etc.
Even if it were to somehow come back in a few years, 20-30 years worth of scientific knowledge, trials, studies, etc would be complete LOST. Many of those occur over 10-20 years and would be completely invalidated due to the gap and many variables.
It’s absolutely heartbreaking and gut wrenching. Not for me as it’s too far advanced, but for all the millions of people that do or will suffer around the world from the more common issues like Alzheimer’s, MS, epilepsy, etc. They now have no hope.
THIS IS NOT POLITICAL, PLEASE - FOR ME - DON’T MAKE IT SUCH IN THIS THREAD!
Ugh. We were in contact with a very influential person at the NIH through a former friend that has a billion connections regarding potential Parkinson’s trials run by the NIH. In case you didn’t know, the National Institutes of Health, run by the US gov’t is the largest source of research funding In the world for all neurological disorders.
Most studies largely targeted early detection, possible prevention, slowing down the progression, and specific symptom relief, as there is obviously no cure for your brain dying. Especially in atypical Parkinson’s like mine where it dies much faster and impacts every part of your body.
Unfortunately, and without reason or notice, the entire NIH Neurological Center was completely shut down, along with all studies, trials, funding, scientists, etc. This is absolutely devastating for neurological related diseases such as PD, ALS, Alzheimer’, MS, MD, brain tumors and cancer, stroke, epilepsy, etc.
Even if it were to somehow come back in a few years, 20-30 years worth of scientific knowledge, trials, studies, etc would be complete LOST. Many of those occur over 10-20 years and would be completely invalidated due to the gap and many variables.
It’s absolutely heartbreaking and gut wrenching. Not for me as it’s too far advanced, but for all the millions of people that do or will suffer around the world from the more common issues like Alzheimer’s, MS, epilepsy, etc. They now have no hope.
THIS IS NOT POLITICAL, PLEASE - FOR ME - DON’T MAKE IT SUCH IN THIS THREAD!
Last edited:
Bumping this because we a re winningv by 20 hope to get some crossover traffic from the game thread.
Jeremy started something, that consumes waaaay too much of my time. Thank you!
I'm forever grateful. As well, my sorta-kinda dormant Cyclone athletic following, was revived and thensome, via Cyclonefantic.
I'm forever grateful. As well, my sorta-kinda dormant Cyclone athletic following, was revived and thensome, via Cyclonefantic.
I have a son with epilepsy, a father with Parkinson’s, and a father in law who died from effects of Progressive Supranuclear Palsy so this is incredibly disappointing to hear. I’m sorry for your struggles and for this horrible news!
Donated. Been coming to this site since my sophomore year in ‘07.
What I find hilarious is that people use CF for things that seem to have better sources elsewhere. From preparing your lawn for spring application, to health and fitness, funeral planning, breaking news, dating advice, and the occasional Cyclone sports meltdown, CF has it all. I am not sure this is what Jeremy envisioned but it is what his original creation has morphed into. Thanks to all for helping him in whatever ways you are able.
Are you sure about that? Sometimes the small print has wonderful news if we only think to look there.Yeah, I should have read the Terms and Conditions of this body better. Unfortunately past the warranty period too
Bumping this up. Jeremy worked tirelessly on CF to build the community back in the day. If you are able, please chip in here.
It's amazing. I haven't gone to a different source for weather in 10+ years. Obviously I've used it for a diary (probably more than I should have), and the discussions around every day tools, electronics, support, etc are amazing. I never imagined that side of it, but it's a huge part of what keeps people coming back - it's like Reddit with subreds for anything imaginable.
When you add in everything Chris and his crew have done to take the media and sports side to a whole new level, this place is truly one of a kind.
Last edited:
Thank you very much brother!
I've never asked for anything in my life, but like we've been talking for 6 weeks or so, I could really use your help if you wouldn't mind posting something on the site, social media, etc. I've always been amazed at the compassion and outpouring of support you do for kids in need, it's incredibly heartwarming and I try to do everything I can to support those efforts. While we're not in that kind of situation, and kids are absolutely a special case, any help would go a really long way.
Weekly Update - 3/2/25
Dear Friends, Family, and Supporters,
We cannot express enough gratitude for the love and generosity you have shown over the past week. Every donation, every share, and every kind word fuels our hope and strengthens our fight against Parkinson’s and the challenges it has placed on our young family. Because of you, we are one step closer to our goal—ensuring Jeremy receives the care, treatments, and support he deserves.
We still have a long way to go, but together, we can get there. If you haven’t already, please consider sharing this fundraiser with your friends and networks. Every share brings us closer to reaching those who may be able to help.
Thank you for being part of this journey with us. Your support means everything.
With unending gratitude,
Jeremy and Rhonda
www.gofundme.com
Dear Friends, Family, and Supporters,
We cannot express enough gratitude for the love and generosity you have shown over the past week. Every donation, every share, and every kind word fuels our hope and strengthens our fight against Parkinson’s and the challenges it has placed on our young family. Because of you, we are one step closer to our goal—ensuring Jeremy receives the care, treatments, and support he deserves.
We still have a long way to go, but together, we can get there. If you haven’t already, please consider sharing this fundraiser with your friends and networks. Every share brings us closer to reaching those who may be able to help.
Thank you for being part of this journey with us. Your support means everything.
With unending gratitude,
Jeremy and Rhonda
Donate to Help Support Young Iowa Family Fight Parkinson's, organized by Jeremy Lind
Help Support Young Iowa Family Fight Parkinson's Our family is fa… Jeremy Lind needs your support for Help Support Young Iowa Family Fight Parkinson's
Last edited:
Breakthrough Discovery: Scientists Identify Key Protein Linked to Parkinson’s Onset
LJI scientists identify an autoimmune response that may help explain why Parkinson's disease is twice as prevalent in men. Scientists at the La Jolla Institute for Immunology (LJI) have identified a potential new target for Parkinson’s disease treatment. Their research highlights the role of a sp
scitechdaily.com
I hope research will continue as they seem to learn more frequently. I didn’t realize it was more common in men, but now that I am reading more about it, realize I have known four men and only one woman who fought this disease.
