Dan Winters leaving WHO

[ianoconnor]

had a teacher in 4th grade, also she was a friend of my mom, had ALS. She lived with it for 30 years. It progressed very slow. It ended up getting severely bad. Very sad disease. Wish the could figure something out to at least help out. I realize it's probably not something they will every cure though.

It's terrible. Interesting how in some it progresses slowly - Steven Hawking lived with it for 50+ years, but the average expectancy is 2-5. My BIL passed from ALS in 2013.

 

[houjix]

Neurodegenerative diseases scare me more than anything else in existence.

 

[mj4cy]

Neurodegenerative diseases scare me more than anything else in existence.

Same. It's my number one fear beyond all measure.

 

[1UNI2ISU]

I went through the diagnostic process for ALS in 2016. I'm thankful every day that I don't have it but even that process is so insanely stressful. It consumes you, it's all you can think about.

Would not wish any neurodegenerative disorder on anyone. It's truly, truly heartbreaking.

 

[Drew0311]

Neurodegenerative diseases scare me more than anything else in existence.

I agree. My friends dad was diagnosed with Dementia. He went from hanging out with us on a boat one summer, the next summer he had no idea who his son was and didn't know anyone. He did somehow remember his high school football friend and that guy would come see him to talk football. Not recent football. Mind you he thought they were still on the team even though he was 63 years old. Very strange stuff and something that scares me.

 

[Saul_T]

I agree. My friends dad was diagnosed with Dementia. He went from hanging out with us on a boat one summer, the next summer he had no idea who his son was and didn't know anyone. He did somehow remember his high school football friend and that guy would come see him to talk football. Not recent football. Mind you he thought they were still on the team even though he was 63 years old. Very strange stuff and something that scares me.

My best friend lost his uncle last week. His family wrote a very thoughtful obituary about how he ended his life because he could not reconcile his physical health, mental health, and general quality of life after suffering from Dementia.

I've been lucky that my family has been spared from these diseases. The trade of was rampant cancer, unfortunately.

 

[CycloneDaddy]

Dang this is sad / heart breaking.

 

[michaelrr1]

Full 26 minute video.

https://who13.com/news/if-the-doctors-are-right-im-probably-done-telling-you-about-the-weather-but-i-still-have-a-lot-to-say-who-13s-jeriann-ritter-opens-up-about-her-health-journey/

 

[Jnecker4cy]

ALS is tough with very little known. My Fraternity is heavily involved with the Live Like Lou Foundation for ALS research. We also give out the Annual Lou Gehrig Award in MLB.

New research partnerships with Vanderbilt and The University of Pittsburg. Really bad disease with very little known.

 

[twojman]

While watching this on the 6PM news...man it was a tough watch. Relatively speaking she's pretty young. A fun, caring and vibrant person getting something like this, man. She was very positive, hats off to her. My wife had tears in her eyes watch the interview.

We need more Jeriann in this world...